TWi Biotechnology will be a featured speaker at the April Town Hall Meeting hosted by the EB Research Partnership (EBRP). The event will take place on Wednesday, April 30 at 5:00 PM Eastern Time. Dr. Yiumo Michael Chan, Ph.D., Senior Advisor at TWi Biotechnology, will share the latest research findings and advancements in the treatment of Epidermolysis Bullosa Simplex (EB Simplex).
EBRP regularly hosts online Town Hall meetings to bring together researchers, patient advocates, and organizational members to discuss the latest developments in disease research and clinical trials. The upcoming April 30 session will spotlight the EBShield clinical trial led by TWi Biotechnology, focusing on the safety and efficacy of diacerein in treating patients with moderate to severe EB Simplex.
Guest speakers for this session include Dr. Yiumo Michael Chan, Senior Advisor at TWi Biotechnology; Nisha Trivedi, an EB Simplex patient advocate; and Allison McGettigan, Program Director at EBRP. To register for the event, please visit:
https://www.ebresearch.org/townhallrsvp.html
About the EB Research Partnership (EBRP)
The EB Research Partnership (EBRP) is a global nonprofit organization founded in 2010 by a group of dedicated parents along with Pearl Jam lead singer Eddie Vedder and his wife Jill Vedder. EBRP is committed to funding research to treat and cure Epidermolysis Bullosa (EB)—a rare and life-threatening genetic skin disorder. Patients with EB have extremely fragile skin that blisters or tears from even minor friction, earning them the nickname “butterfly children.”
Since its founding, EBRP has raised over $60 million and funded more than 140 research projects, increasing the number of EB-related clinical trials from just 2 to over 40, including two FDA-approved therapies. EBRP utilizes an innovative venture philanthropy model, applying business-driven investment strategies to philanthropy in order to accelerate research and reinvest successful returns into future promising projects.
To learn more, please visit their official website:
https://www.ebresearch.org
